Our approach: We use this list more as a guideline rather than a hard-fast rule and you probably should, too. Everyone responds differently to different triggers. Essentially, you need to know your body and your triggers. Your best bet in determining how foods affects you is by doing an elimination diet. While you don't need to do this under the care of a doctor or Registered Dietitian, you probably should.
Some of the distinctions between the "Foods to Avoid" and "Foods to Enjoy Occasionally" categories are somewhat arbitrary. The main reason for this is that we're not quite ready to give up items in certain categories (mainly alliums and dairy).
Foods to Avoid (High in phytoestrogens or sulfur)
Foods in this category should be avoided or eaten/taken infrequently at most. They may be high in phytoestrogens or sulfur or they may be porphyrenagenics. We do our best to avoid items in this category as much as possible.
- Alcohols and vinegars: Prepared mustard, all alcoholic drinks, all vinegars
- Brassica vegetables: bok choy, broccoflower, broccoli, broccoli rabe/rapini, Brussels sprouts, cabbage, canola/rapeseed oil, cauliflower, collard greens, daikon radish, horseradish (reg or Japanese), kale, kohlrabi, maca, mustard greens, pak choi, peppergrass, radish, rutabaga, turnip, wasabi, watercress
Fabacea vegetables:chickpeas/garbanzo beans, kidney beans, lentils, lima beans, peanuts
- Fruits: coconut (sulfured), dried fruits (sulfured), grapefruit, prepared lemon/lime juice (sulfured), prunes, raisins, red grapes, red plums, red/purple grape juice, tangelo
- Soy products: bean curd/tofu milk, edamame, miso, soy cheese, soy lecithin, soy milk, soybean oil, tamari, tempeh, tofu
- Supplements: Acidophilus (dairy source), ALA, Biotin/Vitamin B7/Vitamin H, bromelain, chlorella, Cysteine, DMSO, extracts of the high sulphur foods, glutathione, Methionine (converts into cysteine), MSM, NAC, papain, Thiamin/Thiamine/Vitamin B1/aneurine, Turmeric
- Uncategorized: asparagus, barley, chamomile, clover, fennel, flax, millet, rye, sesame seeds, spinach
Foods to Enjoy Occasionally
Foods in this category may be eaten, as the title suggests, occasionally. They may have a higher level of phytoestrogens or sulfur, but not as high as those items listed above. We try not to eat these items that often, but we're not super strict about it.
- Allium family: chives, garlic, kurrat, leek, onion, ramp, ramson/buckram, shallot
- Dairy products: cheese, cream, milk, ricotta cheese (also has vinegar), sour cream, whey
Fabacea vegetables:beans of all sorts, bean sprouts, carob, green beans, jicama (yam bean), peas, split peas
- Fruits: papaya, pineapple
- Other: chocolate
Foods Not Yet Assessed
Foods placed in this category may have conflicting information as to whether they are porphyrenagenic or not. Also, there may be conflicting anecdotal evidence as to how they affect certain individuals. Or, we may really like food items in a certain sub-category and are really loathe to cut it out without some serious testing first. We try not to eat these items that often, but we're not super strict about it.
- Fruits: apple skins, avocado, banana, cranberry, raspberry, watermelon
- Other: coffee, egg yolks, meat, seeds, tea, turmeric, yeast extract (vegemite)
- Uncategorized vegetables: corn, cucumber, kelp/kombu/alginate, okra, sweet potato (american yam), swiss chard, tomato
I am not a Registered Dietitian. I have compiled this list based on information found on the web. I've done my best to make sure that it is accurate, but I can't be 100% sure about that. I've culled most, but not all, of my information from the following links:
Porphbook on Tripod
High sulfur/thiol raising foods (LivingNetwork)
High sulfur foods (Canary's-eye view)
PorphyriaFacts (this site is really confusing)
Please leave any comments regarding how these foods affect you. Also, feel free to ask any questions and I'll do my best to help!